The Jefferson Center for Autism and Neurodiversity at Jefferson University, in partnership with Special Olympics, is seeking participants to take part in a study on enhancing healthcare experiences for individuals with intellectual and developmental disabilities (IDD).

Jefferson is inviting individuals with IDD to participate in the study. The study will assess the usability, feasibility, and acceptability of the Health Passport (HSE). The Health Passport is a tool developed by Health Services Executive of Ireland. It is a personal health care documentation application that seeks to simplify the communication of health care needs for individuals with disabilities. The application includes sections on Critical Information, Personal Information, Communication, Decision Making, Medical History, Food and Drink, and Personal Care. These categories can be customized with information unique to the individual that may ease communication barriers in the health care setting.

The Jefferson University study is looking to assess the feasibility of using the Health Passport.

Who can be a part of this project?

Individuals (18+) who report having an intellectual and/or developmental disability and are actively receiving healthcare in any form along with their care partner (caregiver, parent, or guardian).

What will be asked of you?

If eligible, you will be asked to complete a semi-structured interview alongside your care partner to assess the facilitators and barriers to the Health Passport (HSE) whilst navigating the platform. You will also be asked to complete a demographics survey upon completion of the interview

What are the benefits of being part of this project?

Informing the potential development of a health communication tool via the Special Olympics for those with communication needs in a healthcare setting.

All participants with IDD will receive a $30 gift card for their contribution.

I’m interested! How do I participate?

For more information scan the QR code or please email or call Alexandria Krasin at aek038@students.jefferson.edu or (901) 487-9563.